Congenital infiltrating lipomatosis is a rare, benign fatty tumor that causes asymmetry and facial deformity as it grows. Led by Dr. Waner and Dr. O, the Vascular Birthmark Institute offers expert diagnosis and treatment for this challenging condition, helping children achieve improved appearance and function through specialized surgical care.
What Is Congenital Lipomatosis?
Congenital infiltrating lipomatosis is a rare, benign condition in which fatty tissue infiltrates the soft tissues of the face or neck, typically affecting only one side. This results in asymmetry and lopsided heaviness and can progressively worsen as a child grows. Unlike simple lipomas, this form deeply invades surrounding structures, making it more complex to treat. Few doctors have experience managing this abnormality. However, at the Vascular Birthmark Institute, our doctors specialize in diagnosing and treating congenital lipomatosis.
Signs & Symptoms of Congenital Lipomatosis:
- Noticeable asymmetry of the face or neck at birth or early in childhood
- Progressive enlargement of one side of the face or neck over time
- Soft, fatty swelling that feels different from normal tissue
- Lopsided heaviness or fullness in the affected area
- Distortion of facial features as the child grows
- Potential functional issues if the mass affects surrounding structures
Treatments for Congenital Lipomatosis
At the Vascular Birthmark Institute, we conduct a comprehensive evaluation to confirm the diagnosis of congenital infiltrating lipomatosis. Because this rare condition can be easily misdiagnosed, Dr. Waner and Dr. O use advanced imaging studies to assess the extent of tissue infiltration.
Once a diagnosis is made, we curate a treatment plan tailored to your child’s needs, focusing on removing the mass and restoring a natural facial appearance.
Surgical Excision
Surgical excision is the primary method for treating congenital lipomatosis. Our surgeons carefully remove the infiltrated fatty tissue from the face or neck while preserving important structures like nerves and muscles. This requires a high level of precision, as the fatty tissue can spread into surrounding areas. The goal is to remove as much of the mass as possible while minimizing trauma to healthy tissues, which helps reduce the risk of recurrence.
Liposuction-Assisted Debulking
In some cases, liposuction may be used in combination with surgical excision to reduce the bulk of fatty tissue. Liposuction involves using a small cannula to suction out fat cells through tiny incisions. While it is less invasive than full excision, it is typically used to complement surgery rather than as a standalone treatment. Liposuction can help contour the face and neck, making the final result appear more balanced and natural.
Facial and Soft Tissue Reconstruction
After removing the fatty mass, reconstruction is often necessary to restore facial symmetry and function. Our surgeons may use specialized techniques to reposition soft tissues, resuspend facial structures, or improve skin contour. In some cases, additional procedures such as fat grafting, skin tightening, or flap surgery may be recommended over time to achieve the best aesthetic and functional results as your child grows.
Long-Term Monitoring and Staged Treatments
Because congenital lipomatosis has a tendency to recur, ongoing monitoring is essential. We schedule regular follow-up appointments to track your child’s progress and detect any regrowth early. In some cases, staged treatments—where smaller surgeries are performed over time—may be necessary to adapt to changes as your child’s face develops. Our goal is to provide lasting, natural-looking results while minimizing the need for future interventions.
Schedule Your Consultation
Vascular Birthmark Institute is a leading center for the diagnosis and treatment of rare vascular anomalies and congenital tumors. Led by Dr. Waner and Dr. O, our team offers expert care for children affected by congenital infiltrating lipomatosis. We understand the complexity of this condition and are dedicated to achieving the best possible aesthetic and functional outcomes. If your child has been diagnosed with congenital lipomatosis, we encourage you to schedule a consultation with our specialists to explore treatment options.
Contact Vascular Birthmark Institute Today
